On Facebook, I belong to Gastroparesis Support and Living With Sjogren's Syndrome communities. I have done research online, through my brilliant cousin Mechell who is awesome and well-versed in Holistic Medicine among other talents. I have a family history of auto-immune disorders, though I'm still pending a formal diagnosis of Sjogren's. I use Biotene toothpaste, mouthwash and hydrating gel (at night), Thera Tears as needed, Refresh P. M. sensitive ointment (at night) and am on Neurontin for the diagnosed Fibromyalgia, though it's never really helped. I'm hoping to get my doctor to prescribe Domperidone for my stomach and maybe try Lyrica for the neurological pain. I've also considered asking for an ADD medication for my fog and inability to concentrate well. I use olive oil-based soap for my face because it's non-drying, but cleanses well and Dove Sensitive SPF 15 lotion. And for my body, I use Olay Body Butter Ribbons. I was using a steroid solution called Clobetasol for my Seborrheic Dermatitis but it isn't working anymore. And I take Lisinopril for my Polycystic Kidney Disease.
I hope to make this an open forum for others who suffer from chronic illnesses to help one another. I also hope to use what I learn as I go to help other mothers organize and figure out how to better manage their time. My lovely daughter will soon be 3!
In coping with my medical issues, I am fortunate enough to have a loving, supportive boyfriend in my life. He is the love of my life, and my greatest supporter in life. He is a fantastic partner and parent, and I am incredibly lucky.
My main entertainments outside of my family are usually craft-related, and I enjoy sharing what I create with others. I look forward to sharing that aspect with my readers also!
I wish all of you peace, strength, hope and love for the new year!
~Marsha
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